caring for the caregiver: a gift of food

During the cancer diagnosis and treatment, the focus is very much on the patient, the one going through the work-up, the biopsies, the chemotherapy or radiation, the surgery, the side effects. But often, there is someone else who may be just as affected by the diagnosis and treatment — the caregiver.

It’s rare that I see a new patient, someone with a new diagnosis of cancer, who comes alone to the first visit with me. There is usually a very concerned wife or husband – or a best friend, a child, a sister or a brother, a church member – sitting right beside his or her loved one, holding their hand or patting their knee, ready with a notebook and pen to write down the important details of the cancer that I’m about to share. And, without fail, that same caregiver is at almost all the visits to come, all the appointments for chemotherapy and beyond.

And, while it’s never intentional, it is easy for the caregiver to be forgotten along the way. The attention is necessarily – and rightly so – focused on the person who is dealing with cancer, but the caregiver is generally carrying quite a heavy load. The caregivers I’ve encountered are often silent, going through the experience without complaining. It seems intuitive, but medical literature tells us that caregivers are more likely to become ill themselves, have higher rates of depression and insomnia, have more emotional stress and financial burden.

It’s not uncommon — in fact, I’d say it’s VERY common — for caregivers to neglect themselves while caring for their loved one. They may stop exercising. They may not get enough sleep. And often, they don’t focus on eating healthy — or eating at all. It’s just not a priority. Just ask my mother – she’s been known to eat potato chips for dinner while caregiving for my father and my grandmother recently.

If you’d like to help out a friend with cancer, I’d encourage you to think about doing something special for his or her caregiver as well. A simple gift of a homemade meal will not only provide a nourishing alternative to fast food or a peanut butter sandwich, but it will also lift up their spirits and nourish the soul.

I’ve listed a few recipe ideas below for meals that should be easy to make ahead and are freezer-friendly. Just remember to package up the meal in disposable pans to minimize any clean-up. Your task is to make the caregiver’s life easier, not make her spend an hour washing dishes afterward. Now, go forth and cook!

teacher, teach thyself

When I was a medical student, over 10 years ago, we weren’t taught much in the way of nutrition. During the second year, our courses were divided by organ system. The section on nutrition was combined with the study of the gastrointestinal system. The bits that I remember learning mostly evolved around basic physiology of nutrition – protein and fat metabolism, carbohydrate breakdown and the Krebs cycle. I don’t recall learning anything practical or useful.

Of course, I wasn’t ready to hear it then, so even if it was taught, I wasn’t receptive.

It has only been over the last 8 years or so, as I’ve developed my love and respect for food – and for cooking and eating and sharing meals – that I’ve learned the importance of what we put into our bodies. Obviously, I knew nutrition was critical to health, in a very clinical sense, but now I know that it is so much more than that. I’m certainly no expert in nutrition, but I’ve absorbed as much as I can, especially as it relates to cancer promotion and prevention.

My medical school was not unique, and it looks like this is a problem across the face of medical education. I’ve taken an informal poll of the medical school I currently teach in, and I’m told by students that they have an optional one hour online course on nutrition that they can take. If they feel like it.

I’d love to see this change.

i’m on chemo and food doesn’t taste right…what can I do?

This is the first in a series of questions I plan to answer, all surrounding how better to enjoy food despite cancer and the cancer treatment process. I welcome feedback or suggestions, so please leave a comment if you have anything to share.

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The taste of foods often changes for people undergoing chemotherapy. This doesn’t happen to everyone receiving chemotherapy as part of cancer treatment, but it certainly happens to a lot. I’ve seen it happen as early as the first dose of chemotherapy, and it’s become my practice to warn people about this side effect. Foods that you used to love may now taste awful, and slightly sweetened foods may now taste sickeningly sweet. Food may taste metallic or bland and like cardboard. Not only can this side effect can lead to decreased appetite, weight loss, and malnutrition, but alterations in taste can dramatically decrease our ability to simply enjoy eating food, something that is critical to our quality of life as humans.

We aren’t sure why this side effect happens, but there is medical literature to suggest that changes in both the sense of smell and the sense of taste occur with various chemotherapy drugs. The sense of smell is heavily tied into our sense of taste, so an alteration in either can really mess things up. If you’ve ever had a bad cold and couldn’t taste your food properly, you have some idea of what this is like.

The unfortunate thing is that there is nothing that can prevent this taste alteration or solve the problem once it’s started. But, there are strategies that can be tried to get around it. Most importantly is to experiment with different foods. It may be that foods that you used to enjoy are now unpalatable. If that’s the case, branch out of your comfort zone and try foods with a different flavor profile. Experimentation is critical to finding foods that work and that you can still enjoy.

Many find that very spicy foods or dishes with a lot of heat in them are best during this time. Try foods from another culture – Asian foods or Indian foods, for example. Add extra spices to boost flavor. Marinate chicken, pork, or beef to increase the flavor in the protein. If food has a metallic taste, use plastic or bamboo utensils.

The most important rule is to just keep trying. You’ll find something that will work.

Here are a few suggested recipes to try:

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